What does EDS FEEL Like?

Sometimes things are just easier said than written. I’m so uncomfortable in front of a camera but I am getting used to it with Facebook Live because I get to say things that would take forever to write (or read). As part of EDS awareness month, on Monday I did a video on the new criteria for EDS and why they are still a good thing for me, how they empower me, even though I technically now “fail” the test.

Today I got to speak about what EDS feels like. This was particularly meaningful for me because I could bring my actual voice into the whole thing and people could hear me as I speak instead of just in their own version of my voice in their heads. But I also talk with my hands a lot and so I got to explain things like the ways in which our bodies move and why that hurts, in a way that words on a page could never do… using my fists and my arms.

I’m not sure I’m getting any better at it yet but I am learning to feel more at home now that I have stopped trying to do all the things that people say you “should” do on Facebook Live streams (like introduce yourself and brag about who you are and what you do etc). I pretty much just get into it and I am enjoying that.

So HERE are this week’s episodes and what EDS feels like. Please watch and share for EDS awareness month!

EDS Facebook Live Front RoE

PS: If you want to win a signed copy of my book “The Lion and the Peacock”, and a pair of my Zebra earrings, then watch the video or sign on for details in this month’s “no spam” newsletter by signing on HERE 🙂

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To book a talk with me and discuss my schedule you can contact me on JPeaSmith@KingsRoadChronicles.com

Where you can find and follow Jennifer: 

@JPeaSmith
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Running on Empty!

Facebook Live Front A1-3

Facebook Live. I’m lovin’ it. I started a couple of days ago with the testing which was awkward and weird but I am finding my space there slowly, and really enjoying it. I asked for questions for the next few weeks of “shows” and as I been asked a lot of questions before, through my blog and Facebook stories, as well as my Mighty Stories, I suddenly have quite a long list to keep me going for a while.

I want to do this well, so I spent a few days mulling over the list of questions and today we realised that most of the questions fall under one of four categories which are not surprisingly, quite relevant to anyone, even those without a chronic illness at all. People who could benefit from these Q&A sessions will be those who are struggling (or who know someone struggling) with a difficult season in their lives. This will include those dealing with bad health, grief, loss, or any other life change such as divorce or moving far away.

Once every two weeks, I will be doing a Facebook Live under the heading of “RUNNING ON EMPTY”. Topics for discussion will cover general topics like managing medications, getting help from those around you, negotiating specialists, and understanding your life changes. But May just happens to be EDS Awareness Month so the sessions in May will include (but be limited to) things like “What is EDS?”, “A Day in My Life”, “An EDS First Aid Kit” and so on.

Here is the schedule for the next few months ( I will update it regularly with new links and updated information as we go!) :

  • Monday, May 1st – I will be focusing on EDS because May is EDS Awareness Month and what a better way to start than that!  | New York: 2pm | London: 7pm | Johannesburg: 8pm |Sydney 4am |

 

  • Thursday, May 18th – “A Day in My Life”| New York: 5am | London: 10am | Johannesburg: 11am |Sydney 7pm |

 

  • Monday, May 29th – | New York: 3pm | London: 8pm | Johannesburg: 9pm |Sydney 4am |

 

  • Thursday, June 15th – | New York: 5am | London: 10am | Johannesburg: 11am |Sydney 7pm |

 

  • Monday, June 26th – | New York: 3pm | London: 8pm | Johannesburg: 9pm |Sydney 4am |

 

  • Thursday, July 13th – | New York: 5am | London: 10am | Johannesburg: 11am |Sydney 7pm |

 

  • Monday, July 24th – | New York: 3pm | London: 8pm | Johannesburg: 9pm |Sydney 4am |

 

  • Thursday, August 10th – | New York: 5am | London: 10am | Johannesburg: 11am |Sydney 7pm |

 

  • Monday, August 21st – | New York: 3pm | London: 8pm | Johannesburg: 9pm |Sydney 4am |

 

So pop those in your diaries or go HERE to watch this short introductory Facebook Live. At the very end, it will give you the opportunity to turn on notifications for my future Facebook Lives. You can also simply “Like” and Follow my Facebook Page and the following places to get updates and changes. Please remember to share any of my Posts across my social media platforms.

@JPeaSmith
 
“Here she comes, running, out of prison and off the pedestal: chains off, crown off, halo off, just a live woman.”  ― Charlotte Perkins Gilman