Glossary of Terms

EDS: Ehlers-Danlos Syndrome:

Mine is Hypermobile Ehlers-Danlos Syndrome) sometimes referred to as hEDS or EDS type 3

Subluxations (incomplete or partial dislocation of a joint or organ)

Weight Bearing shortenings:
NWB: No weight bearing at all, or non weight bearing.
PWB: Partial weight bearing.
FWB: Full weight bearing.

CT (carpel tunnel syndrome)

LFI: Lisfranc Injury (can be either fracture or dislocation). (
Lisfrancer: Someone with an LFI

Zebra: The EDS “mascot” (

Some symptoms are not DIAGNOSTIC CRITERIA but are a common findings … which doesn’t lessen their affect, but it’s still part of the “package”

Painsomnia: Can’t sleep because of so much pain…

TMJ (can’t remember what it stands for but it means that my jaw locks from “settling” in the night and can’t go back where it belongs when I wake up 😦

Spoons/Spoonies: A random measure of energy for each day, a term coined by Christine Miserandino and used widely in the world of chronic illnesses which include a lack of energy.

The Spoon Theory written by Christine Miserandino


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