Facebook Live is my New Voice!

Facebook Live Front B2

In a couple of hours I will be going live for the first in the series on Telling Your Story on my Facebook Page. I’d love to speak with you there!

If you had asked me a year ago how I felt about being on camera, I would have baulked. Actually, a few months ago I would have said the same thing. I HATE myself on camera and I hate the sound of my own voice. I still do, let me tell you!

But with so many talks and interviews lately and before I knew it I’d said yes to doing a Facebook Live for The Mighty. I’ve no idea what’s come over me but I’m loving it. I still hate looking at myself on camera or hearing my own voice, but even with my brain fog and nerves and all the rest of it, I am finding that the live interaction on Facebook Live is right up my alley. I even tried to do one that wasn’t live (as in a podcast / Youtube video) and I just froze through the whole thing.

I think that talking to a live, interactive audience changes everything for me as I quickly forget the camera and simply talk to people. I share my story and my heart and simply answer questions and the next thing I know I’ve run over time. So thank you all for your support in these. Please feel free to watch past streams and sign on for new ones HERE.

I write memoir, and I speak and write on chronic illness, abuse, EDS and more, but finding my voice has been the overarching theme through everything as I have spent my life so far struggling with being squashed and bullied and silenced. Finding my voice has been one of the most liberating things in my life but it has also been the hardest. It wasn’t overnight, it wasn’t even over months. It was a long and painful journey that I am still walking. This adds such a richness to that story.

Nothing will replace the full books where I can speak about things that are too hard to say out loud, or are too long for a single sitting, but speaking live with people brings my story to life in a whole new way!

Just scroll down on the right here to Categories and click on “Facebook Live” to see other posts on this amazing platform.

To book a talk with me and discuss my schedule you can contact me on JPeaSmith@KingsRoadChronicles.com

Where you can find and follow Jennifer: 


May is EDS Awareness Month!!


This is it people, this is our month! We love being a part of rare disease day and the other groups we get to be a part of, but May is our month, our time in the sun and we get to shout it out and let everyone know about us, and Zebras and all there is to know about Ehlers-Danlos Syndrome. We can’t make anyone listen, but in May we have permission to shout about it 🙂

So I am going to kick off EDS Awareness month by going live! Just like and follow my Facebook Page HERE then tune there this coming Monday, May 1st at the following time for my first ever Facebook Live (if nothing else than to laugh at me and all the mistakes I make LOL).

PST 10:30am EST 1:30pm London 6:30pm – Johannesburg 7:30pm

You can ask me anything EDS, chronic illness, anxiety, or book related and I will try and answer as best I can. If you have EDS yourself then get your friends and family to join in as well, as they can ask questions too! Looking forward to seeing you then!

For a direct link to the Event go HERE, and share the link around, tell me you are coming, and best of all, ask as many questions as you’d like ahead of time but putting them in the comments. On the night, these will be the first ones I answer but you will be able to ask more in the comments of the live event. I’d so appreciate your support! Don’t forget, it’s this coming Monday!

Julie post LifeLine

To book a talk with me and discuss my schedule you can contact me on JPeaSmith@KingsRoadChronicles.com

Where you can find and follow Jennifer: 


Anxiety & Chronic Illness

I love a good book signing of course, but even more than that I love to speak about my journey and my experiences with chronic illness and anxiety in ways that encourage people.

Last week, I was given the amazing opportunity to do both and speak at Life Line  Johannesburg, and I was thrilled, humbled and honoured to speak to their counsellors.

For those of you haven’t heard of Lifeline, they are a nonprofit organisation across the world who provide round-the-clock telephone and scheduled face-to-face counselling sessions, for free, to anyone in need of help

These men and women donate their time and expertise to be just a phone call away from anyone in the public. They are known for their suicide prevention calls but they take calls on any urgent matter that any person may have.

I am sure that you can imagine that when a person phones in, they are more likely than not, to be in extreme distress. Their anxiety, one way or another, is on super-drive. Most aren’t ringing about anxiety, they are phoning because of a specific issue, but they are also extremely anxious.



It was a huge privilege to be invited to speak to some of their local counsellors about my Book.



But anyone who has been involved in the chronic illness world, even if for just a short time, will know that many of us experience isolation, rejection, loneliness, pain, trauma, abuse (the list is almost endless) way more than the rest of the population. So as a somewhat visibly disabled person (I walk slowly and with a crutch), I was able to incorporate that into my talk. It felt like a small win for my community, to be able to discuss the links between physical illness (especially long term) and anxiety and the various ways in which the lines between them can be quite blurred.

There were so many great questions and the two hours just flew by. It was a great environment to share my journey and hopefully, I planted enough seeds that as these brave men and women continue their great work, they will be able to help even more, especially those who phone in and also happen to have a long term illness, a mental illness, or a debilitating illness.

We taped the whole thing so that I could share it and then all the footage was lost (yes, I am trying very hard not to be angry LOL). But we plan on doing it again and also starting some kind of public Q&A where I can share with the public 🙂

Thank you to Lifeline for the opportunity, and for this great endorsement! I was honoured 🙂

Julie post LifeLine


IMG_4276To book a talk with me and discuss my schedule you can contact me on JPeaSmith@KingsRoadChronicles.com

Where you can find and follow Jennifer: 

“Here she comes, running, out of prison and off the pedestal: chains off, crown off, halo off, just a live woman.”  ― Charlotte Perkins Gilman